Please join us...
...in praying for our Mary Anna. Today I took her to the ophthalmologist to have her eye checked as a bit of ptosis was detected when we had her last Well Visit. From what I understand, ptosis is when her top eyelid lags a bit. We have noticed this but often thought it was when she was tired and that she was just like her Mommy as one of my eyes falls a bit when I am tired. Our pediatrician wanted us to have it checked just to make sure, which I am thankful for.
The ptosis doesn't seem to be a problem. We'll have it checked each year and then evaluate around age 4 to see if any repair needs to be done. It probably won't get worse and even has a chance of getting better. Her vision is great.
The concern lies in her bottom lid and the fact that it squints up a bit and her pupil is smaller in that eye. Our first thought is that it was traumatized from delivery as she was posterior and had a black/blue and puffy eye for a couple weeks along with a bright red spot surrounding the blue of her eye. After about a month that went away.
But, the opthamologist is actually concerned about a rare pediatric tumor that can pinch a nerve making the pupil smaller. If this is the case the cure rate, before age 2, is 98%. So...if this is what Mary Anna is dealing with, the percentages look great.
But our hearts are still very heavy. Of course, there are many questions that I want to know answers to now that I have left the office. I was very calm outwardly as he explained this to me but inside I was flying all over the place and I didn't think through some of the questions that I am now thinking through.
We wait until tomorrow to find out when the CT scan will be (at Scottish Rite) and then we'll know test results within 24 hours of the scan.
So, we need you to pray for Mary Anna.
Specifically -
1) that there is no tumor and that this is just how her special little body is made.
2) that she is able to lay still, even as a tiny baby, for the CT scan so that she doesn't need to be sedated
3) for Jason and I as we process and try to stay clear headed when our hearts want to fly all over the place
Thank you in advance as this is when we all find ourselves standing together arm-in-arm...when the best is before us and when the worst is before us. We are praying, knowing Father is in control, and He knows what that "best" is for our family right now.
The ptosis doesn't seem to be a problem. We'll have it checked each year and then evaluate around age 4 to see if any repair needs to be done. It probably won't get worse and even has a chance of getting better. Her vision is great.
The concern lies in her bottom lid and the fact that it squints up a bit and her pupil is smaller in that eye. Our first thought is that it was traumatized from delivery as she was posterior and had a black/blue and puffy eye for a couple weeks along with a bright red spot surrounding the blue of her eye. After about a month that went away.
But, the opthamologist is actually concerned about a rare pediatric tumor that can pinch a nerve making the pupil smaller. If this is the case the cure rate, before age 2, is 98%. So...if this is what Mary Anna is dealing with, the percentages look great.
But our hearts are still very heavy. Of course, there are many questions that I want to know answers to now that I have left the office. I was very calm outwardly as he explained this to me but inside I was flying all over the place and I didn't think through some of the questions that I am now thinking through.
We wait until tomorrow to find out when the CT scan will be (at Scottish Rite) and then we'll know test results within 24 hours of the scan.
So, we need you to pray for Mary Anna.
Specifically -
1) that there is no tumor and that this is just how her special little body is made.
2) that she is able to lay still, even as a tiny baby, for the CT scan so that she doesn't need to be sedated
3) for Jason and I as we process and try to stay clear headed when our hearts want to fly all over the place
Thank you in advance as this is when we all find ourselves standing together arm-in-arm...when the best is before us and when the worst is before us. We are praying, knowing Father is in control, and He knows what that "best" is for our family right now.
I'm praying and will be there to hold you through this.
ReplyDeleteWe are praying for you and know that God is in control, we are praying specifically that there is no tumor and that the CT scan will show that very clearly also that God will just wrap His arms around you and Jason to comfort you and let you know that everything will be ok!
ReplyDeleteIf you need anything we are here for you and your family!
I'm praying for all the things you mentioned. Since I've had the opportunity to visit with more docs than I wanted to this past year, I found that it helped to take someone with me who could be a bit "detached" to take notes. Or I'd take a notebook and take notes myself. In the same notebook, I'd write questions to ask before I went to my appointment. When I walked in, they'd look to see what number of question I was on. :) Writing down questions helped calm me too -- it got the whirlwind somewhat out of my mind and onto paper. I'm praying! P.S. I got you a little something for the kids this past week. Will send it.
ReplyDeletePraying! I just wanted to let you know that a friend of mine has gone through many eye issues with her son. He's now 5 but she has been there and her mother works at an optomologist office. They are great Christian people and I am sure could offer great insight, wisdom, and support should you need it. Just let me know and I can hook yall up on Facebook. --Blair
ReplyDeleteI will definitley be praying for you tomorrow as God holds her in His hands. We love you guys :)
ReplyDelete